Looking Ahead: Changes Approved for 2025 Registry Data Standards

By Stephanie M. Hill, MPH, CTR, NAACCR | April 22, 2024

The High-Level Strategic Group (HLSG) voted earlier this month to approve changes to the NAACCR Data Standards and Data Dictionary (DS&DD) for use beginning with the 2025 diagnosis year (NAACCR v25). The changes include two new site-specific data items (SSDI) as well as a new Pediatric Data Collection System (PCDS). Also approved was the retirement…

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VPR: Leveraging Registry Data for World Trade Center Studies

By Castine Clerkin, MS, CTR | April 15, 2024

Since inviting the next round of investigators to utilize NAACCR’s Virtual Pooled Registry Cancer Linkage System (VPR-CLS), six studies have submitted a Phase I linkage request. Three of these studies focus on the impact of the World Trade Center terrorist attack on 9/11. These studies are as follows: Maintenance of Cohorts for Studying Cancer and…

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Happy National Cancer Registrar’s Week

By Wendy Aldinger, RHIA CTR | April 8, 2024

Happy National Cancer Registrars Week! On behalf of the NAACCR Board of Directors, I want to take this opportunity to honor all cancer registrars for your continued dedication in collecting high-quality data. This year’s theme, “A Diverse Workforce Serving a Diverse Population,” perfectly aligns with the foundation of NAACCR’s mission: “Working Together to Make Every…

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Looking Ahead: Changes Approved for 2025 Registry Data Standards

By Stephanie M. Hill, MPH, CTR, NAACCR | April 22, 2024

The High-Level Strategic Group (HLSG) voted earlier this month to approve changes to the NAACCR Data Standards and Data Dictionary (DS&DD) for use beginning with the 2025 diagnosis year (NAACCR v25). The changes include two new site-specific data items (SSDI) as well as a new Pediatric Data Collection System (PCDS). Also approved was the retirement…

Read More >

VPR: Leveraging Registry Data for World Trade Center Studies

By Castine Clerkin, MS, CTR | April 15, 2024

Since inviting the next round of investigators to utilize NAACCR’s Virtual Pooled Registry Cancer Linkage System (VPR-CLS), six studies have submitted a Phase I linkage request. Three of these studies focus on the impact of the World Trade Center terrorist attack on 9/11. These studies are as follows: Maintenance of Cohorts for Studying Cancer and…

Read More >

Happy National Cancer Registrar’s Week

By Wendy Aldinger, RHIA CTR | April 8, 2024

Happy National Cancer Registrars Week! On behalf of the NAACCR Board of Directors, I want to take this opportunity to honor all cancer registrars for your continued dedication in collecting high-quality data. This year’s theme, “A Diverse Workforce Serving a Diverse Population,” perfectly aligns with the foundation of NAACCR’s mission: “Working Together to Make Every…

Read More >

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CROS Task Force SEEKS Canadian Representatives

By Fernanda Michels | April 4, 2024

In the 2022 Fall edition of the NAACCR Narrative, we shared exciting news about a project aimed at reviewing and…

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By Betsy Kohler, MPH | March 28, 2024

NAACCR Executive Director — BEST. JOB. EVER.

By Karen Knight | March 25, 2024

NAACCR Weighs in on USCDI+ Cancer Registry Use Case Development

By Stephanie M. Hill, MPH, CTR, NAACCR | March 19, 2024

NAACCR, NCRA Partnership for VA Reporting Pays Off

By Heather Stabinsky, MSEd, CTR (Chair) | March 18, 2024

2024 NAACCR Election Results Are In!

By Lori Havener, CTR | February 29, 2024

Share Your Thoughts at NAACCR’s Strategic Plan Town Hall

OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

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Looking Ahead: Changes Approved for 2025 Registry Data Standards

By Stephanie M. Hill, MPH, CTR, NAACCR | April 22, 2024

The High-Level Strategic Group (HLSG) voted earlier this month to approve changes to the NAACCR Data Standards and Data Dictionary…

Read More >
By Wendy Aldinger, RHIA CTR | April 8, 2024

Happy National Cancer Registrar’s Week

By Fernanda Michels | April 4, 2024

CROS Task Force SEEKS Canadian Representatives

By Betsy Kohler, MPH | March 28, 2024

NAACCR Executive Director — BEST. JOB. EVER.

By Stephanie M. Hill, MPH, CTR, NAACCR | March 19, 2024

NAACCR, NCRA Partnership for VA Reporting Pays Off

By Heather Stabinsky, MSEd, CTR (Chair) | March 18, 2024

2024 NAACCR Election Results Are In!

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.

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Member News

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NAACCR Executive Director — BEST. JOB. EVER.

By Betsy Kohler, MPH | March 28, 2024

I love my job! When I took this job nearly 16 years ago, I thought I would stay five, maybe…

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By Heather Stabinsky, MSEd, CTR (Chair) | March 18, 2024

2024 NAACCR Election Results Are In!

By Lori Havener, CTR | February 29, 2024

Share Your Thoughts at NAACCR’s Strategic Plan Town Hall

By Monique Hernandez, PhD | February 5, 2024

Highlighting Benefits to NAACCR Membership

By Gonçalo Forjaz | February 1, 2024

NAACCR, NCI Work Toward International Partnerships for Childhood Cancer

By Wendy Aldinger, RHIA CTR | January 29, 2024

Presidents Message