Become a Charter Member of the Upkeep WG!

By Jim Hofferkamp, BA, CTR | December 9, 2024

The Professional Development Steering Committee is looking for three to four volunteers to join the Upkeep Work Group (WG). We are seeking individuals with a solid understanding of the purpose and functions of a central registry. An ability to manage several projects simultaneously and experience with education and training is preferred.  The Upkeep WG may…

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College of American Pathologists (CAP) PERT Update

By Mignon Dryden, CTR | December 2, 2024

A CAP PERT meeting was held in Las Vegas on Thursday, October 17, followed by a Cancer Data Summit held on Friday, October 18, 2024, both of which preceded the CAP Annual Meeting. Highlights of the PERT meeting included: 2024 Protocol Release – Quarter 4 Release is scheduled for December 11, 2024, and will include…

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It Takes a Village: The Collaborative Review Process That Makes VPR Linkages Possible

By Castine Clerkin, MS, CTR | November 25, 2024

Since its official launch in 2022, NAACCR’s Virtual Pooled Registry (VPR) has been used in more than 30 minimal risk linkage studies. Each linkage request must meet strict criteria and undergo internal NAACCR review before registries and their Institutional Review Boards (IRB)s evaluate a study for release of cancer data. VPR linkages happen in two…

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Secondary data sharing: What is it, why is it important, and how is NAACCR involved?

By Castine Clerkin, MS, CTR | June 30, 2025

Secondary data sharing (SDS) occurs when a primary researcher shares data with a secondary researcher to advance science. Sometimes the shared data may contain information obtained from the cancer registry (e.g., through approved linkage requests). The NIH Data Management and Sharing Policy, published in 2003 and updated in 2023, requires that NIH-funded studies participate in…

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Reflections on the 2025 Annual Conference

By Karen Knight | June 23, 2025

Karen Knight, Executive Director of NAACCR, shares her reflections from the conference, with a call to leadership and working together during uncertain times. Having returned home from the 2025 Annual Conference in Hartford, CT, my heart is full of gratitude for this amazing community and my mind is full of new ideas, challenges and opportunities.…

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2025 NAACCR Board of Directors Election Results

By Mona Highsmith, BA | June 16, 2025

The NAACCR Nominating Committee is charged with encouraging volunteers to consider serving on the NAACCR Board of Directors and to accept eligible nominations for Board elections. For 2025, there were four key leadership roles on the Board of Directors to be filled: Treasurer and three Representatives-at-Large. Additionally, this year’s general election selected three individuals for…

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Featured Articles

Call for Subject Matter Experts: Help Develop Central Registry Training!

By Jim Hofferkamp, BA, CTR | May 26, 2025

The NAACCR Professional Development Steering Committee’s Upkeep Work Group is developing a series of 14–15 online training modules to support…

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

Association

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.

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