New VPR Registries and Initiatives

By Castine Clerkin, MS, CTR | March 17, 2025

We are excited to announce that Minnesota has joined the Virtual Pooled Registry (VPR) initiative and is currently performing their first linkage. Nevada has also rejoined the VPR after a brief hiatus. This brings the number of VPR registries to 47, representing 96% of the U.S. population. A big thank you to all the participating…

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“Making the Case for an International Childhood Cancer Data Partnership” paper published!

By Fernanda Michels | March 3, 2025

Following the 2023 Paris Conference for an International Childhood Cancer Data Partnership, a collaboration of the U.S. National Cancer Institute (NCI), the French National Cancer Institute (INCa), and NAACCR, I am pleased to share an exciting new development. A scientific paper titled, Making the Case for an International Childhood Cancer Data Partnership, authored by Gonçalo…

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NAACCR Laboratory Electronic Pathology Reporting Guidelines, Version 5.1 to go through the HL7 Ballot Process

By Lori Havener, CTR | February 24, 2025

The NAACCR Pathology Reporting Work Group (WG) is a work group under the Standardization and Registry Development Steering Committee (S&RD SC). This group maintains the NAACCR Laboratory Electronic Pathology Reporting Guidelines, Version 5.0. These pathology reporting guidelines have been utilized for over two decades and the Pathology Reporting WG has recommended that the guidelines go…

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New VPR Registries and Initiatives

By Castine Clerkin, MS, CTR | March 17, 2025

We are excited to announce that Minnesota has joined the Virtual Pooled Registry (VPR) initiative and is currently performing their first linkage. Nevada has also rejoined the VPR after a brief hiatus. This brings the number of VPR registries to 47, representing 96% of the U.S. population. A big thank you to all the participating…

Read More >

“Making the Case for an International Childhood Cancer Data Partnership” paper published!

By Fernanda Michels | March 3, 2025

Following the 2023 Paris Conference for an International Childhood Cancer Data Partnership, a collaboration of the U.S. National Cancer Institute (NCI), the French National Cancer Institute (INCa), and NAACCR, I am pleased to share an exciting new development. A scientific paper titled, Making the Case for an International Childhood Cancer Data Partnership, authored by Gonçalo…

Read More >

NAACCR Laboratory Electronic Pathology Reporting Guidelines, Version 5.1 to go through the HL7 Ballot Process

By Lori Havener, CTR | February 24, 2025

The NAACCR Pathology Reporting Work Group (WG) is a work group under the Standardization and Registry Development Steering Committee (S&RD SC). This group maintains the NAACCR Laboratory Electronic Pathology Reporting Guidelines, Version 5.0. These pathology reporting guidelines have been utilized for over two decades and the Pathology Reporting WG has recommended that the guidelines go…

Read More >

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Featured Articles

NAACCR Welcomes Ashley Knealing

By Stephanie M. Hill, MPH, CTR, NAACCR | February 18, 2025

Please join us in extending a warm NAACCR welcome to the newest member of the NAACCR executive office staff! Ashley…

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.

Member News

NAACCR Kicks Off RDU Epi ‘Hour’

By Recinda Sherman, PhD, MPH, ODS-C | February 17, 2025

The Research and Data Use Steering Committee (RDU) recently launched the NAACCR Epi ‘Hour.’ These are information networking and training…

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