NAACCR Data Release Guidelines Published!

By Bozena Morawski | May 22, 2024

What are best practices for deciding when to release cancer registry data to researchers? Which type of inter-institutional agreements might be required? How should your registry handle cases reported solely by Veterans Affairs or inter-registry data exchange in deidentified data sets? How might you best support potential participants when providing data for clinical trials? All…

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Call for Volunteers for Communications Work Group

By Tyler Scott | May 20, 2024

Are you passionate about social media, writing, and editing? Do you have a flair for communication and a keen eye for detail? If so, we are looking for volunteers to join our Communications Work Group! The Communications Work Group plays a vital role in spreading the word about our organization and raising awareness about our…

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Cancer Surveillance Change Management Timeline Assessment

By Lori Havener, CTR | May 13, 2024

The Mid-Level Tactical Group (MLTG) manages the cancer surveillance change control process assessing proposed additions, deletions, and revisions of data standards to ensure an efficient and timely change management process. MLTG is not a NAACCR committee, it is a collaborative body of the standard setting agencies. Members of MLTG include representation from: American College of…

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NAACCR Data Release Guidelines Published!

By Bozena Morawski | May 22, 2024

What are best practices for deciding when to release cancer registry data to researchers? Which type of inter-institutional agreements might be required? How should your registry handle cases reported solely by Veterans Affairs or inter-registry data exchange in deidentified data sets? How might you best support potential participants when providing data for clinical trials? All…

Read More >

Call for Volunteers for Communications Work Group

By Tyler Scott | May 20, 2024

Are you passionate about social media, writing, and editing? Do you have a flair for communication and a keen eye for detail? If so, we are looking for volunteers to join our Communications Work Group! The Communications Work Group plays a vital role in spreading the word about our organization and raising awareness about our…

Read More >

Cancer Surveillance Change Management Timeline Assessment

By Lori Havener, CTR | May 13, 2024

The Mid-Level Tactical Group (MLTG) manages the cancer surveillance change control process assessing proposed additions, deletions, and revisions of data standards to ensure an efficient and timely change management process. MLTG is not a NAACCR committee, it is a collaborative body of the standard setting agencies. Members of MLTG include representation from: American College of…

Read More >

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.