National Childhood Cancer Registry (NCCR) Spring Feature

By Fernanda Michels | April 27, 2026

The NCCR Spring Feature highlights the SEER*Stat Tools Webinar, promotes an NCI Division of Cancer Control and Population Sciences (DCCPS) funding opportunity, and presents usage statistics from the NCCR Data Platform. This edition also features upcoming CCDI webinars, the 2026 NAACCR Conference, and the 2026 NCI Data Jamboree. SEER*Stat Tools Webinar From Data to Discovery:…

Looking to the Future: Changes Approved for 2027 NAACCR Data Standards

By Stephanie M. Hill, MPH, CTR, NAACCR | April 13, 2026

As we move into Spring, many cancer registries are preparing to begin 2026 abstracting, but registry standard setters are already looking ahead to 2027 – and beyond! The High-Level Strategic Group (HLSG) voted last month on changes to the NAACCR Data Standards and Data Dictionary (Standards) for use beginning with the 2027 diagnosis year (NAACCR v27). NAACCR…

NAACCR CPR Guidelines to be Incorporated into HL7 LRI Implementation Guide

By Ashley Harvieux | April 6, 2026

The NAACCR Cancer Pathology Reporting (CPR) Guidelines – also known as Laboratory Electronic Pathology Reporting Guidelines Volume V – are being incorporated into HL7’s Laboratory Reporting Interface (LRI) Implementation Guide through the May 2026 HL7 ballot process. This effort is led by Sandy Jones (contractor) in collaboration with NAACCR’s CPR workgroup. HL7’s LRI is a…

Research and Data Use (RDU) Appreciation Initiative (RAIn) Member Spotlight

By Recinda Sherman, PhD, MPH, ODS-C | November 2, 2026

We often say that NAACCR’s greatest strength is its members, and nowhere is that more evident than in the incredible work of our committees. For many of us, serving on a NAACCR committee becomes a genuine highlight of the job—a chance to collaborate, learn from one another, and contribute to work that matters. In RDU,…

Nominations Open for the 2027-2028 Board of Directors and Nominating Committee

By Stephanie Wilson, BA, ODS-C | October 26, 2026

The Nominating Committee is seeking nominees to run for election to four key leadership roles on the NAACCR Board of Directors, with terms beginning June 2027, as well as candidates for the 2027-2028 Nominating Committee. The NAACCR membership will cast ballots for the following positions: One (1) Treasurer. This is a two-year term. Three (3)…

National Childhood Cancer Registry (NCCR) Fall Feature

By Fernanda Michels | October 26, 2026

National Childhood Cancer Registry Fall Feature The NCCR Fall Feature highlights how high-quality cancer registry data continue to advance childhood cancer research and data sharing. This edition features a study examining patterns in pediatric cancer genomic testing, the expansion of the Childhood Cancer Data Initiative (CCDI) Participant Index and its integration with the NCCR Data…

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.