Are You Ready for the Central Registry HL7 FHIR Implementation Guide?

By Ashley Knealing | November 24, 2025

Prior to official publication of the Central Cancer Registry Reporting HL7 FHIR Implementation Guide, the cancer registry community will have a chance to weigh in during a public comment period. Are YOU ready?  Join NAACCR on December 4, 2025, at 2:00 PM ET for an informational webinar on the Central Cancer Registry Reporting (CCRR) HL7…

Privacy Preserving Record Linkage (PPRL): Coming Soon to the Virtual Pooled Registry

By Castine Clerkin, MS, CTR | November 10, 2025

The current Virtual Pooled Registry (VPR) workflow requires registries to download an encrypted study data file and perform a clear-text linkage using Personally Identifiable Information (PII). To broaden the scope, and enhance the security of the VPR, NCI has encouraged a transition to Privacy Preserving Record Linkage (PPRL). What is PPRL? PPRL is a technique…

NCCR Fall Feature

By Fernanda Michels | November 3, 2025

The NCCR Fall Feature highlights key advancements and initiatives within the NCCR community, including highlights on the inaugural Data Jamboree, new study on clinical trial enrollment disparity using NCCR data, recent updates to NCCR*Explorer and SEER*Stat tools, and important upcoming deadline for NCCR registry participants Call for Data. Data Jamboree: Enhancing Childhood Cancer Data Sharing…

How NAACCR’s Professional Development Steering Committee Advances Training, Mentorship, and Workforce Growth

By Angela Martin | March 23, 2026

Strengthening Cancer Registry Professionals: The Work of the NAACCR Professional Development Steering Committee Leadership, Collaboration, and Growth in Cancer Surveillance Empowering the NAACCR Community The North American Association of Central Cancer Registries (NAACCR) relies on the expertise and dedication of its members to advance cancer surveillance. At the heart of this effort is the Professional…

2026 NAACCR Board of Directors Election Results

By Lucinda Ham, RHIA, ODS-C | March 17, 2026

The NAACCR Nominating Committee is charged with encouraging volunteers to consider serving on the NAACCR Board of Directors and to accept eligible nominations for Board elections. For 2026, there were four key leadership roles on the Board of Director to be filled: President and three Representatives-at-Large. Additionally, this year’s general election selected three new individuals…

TCR data inform the Texas Cancer Plan

By Keisha Keisha, MPH | March 16, 2026

The Texas Cancer Plan (TCP) is the state’s call to action for cancer research, prevention, and control. The Cancer Prevention & Research Institute of Texas (CPRIT), in collaboration with the Texas Cancer Registry (TCR), the Cancer Alliance of Texas, and numerous stakeholders, is charged with developing a cancer plan every few years to address cancer-related…

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.