New Study Highlights Enrollment Disparities in Children’s Oncology Group (COG) Trials Using NCCR Data

By Fernanda Michels | October 13, 2025

A new study published in the Journal of the National Cancer Institute (JNCI) examines the factors contributing to enrollment discrepancies in clinical trials run by the Children’s Oncology Group (COG). Researchers analyzed data linkages between the National Childhood Cancer Registry (NCCR) and COG trial data in order to identify which populations of children with cancer…

CaRDO: A new tool for publishing population-level cancer statistics online.

By Peter Baade | October 6, 2025

Population-based cancer registries play a vital role in collecting high-quality data on newly diagnosed cancers. But it’s equally important to ensure that these data are clearly communicated to policymakers, healthcare professionals, and the public – not only so cancer control efforts and public health priorities are guided by the best available evidence, but also that…

NAACCR Initiatives Supporting Pediatric and AYA Cancer Research

By Fernanda Michels | September 29, 2025

September is Childhood Cancer Awareness Month, a time to recognize the impact of pediatric, adolescent and young adult (AYA) cancers and to highlight the importance of high-quality data in advancing research and improving outcomes. NAACCR is proud to share several ongoing initiatives that support pediatric and AYA cancer surveillance and research. The NAACCR Pediatric SSDI…

Jumping on the Social Media Bandwagon; Strategic Planning and Alliances Steering Committee Social Media Campaign

By Monique Hernandez, PhD | February 9, 2026

Social media has become a central, if not a primary vehicle for public health communication and campaigns. It helps with reaching a broader audience, promoting health literacy, countering misinformation through posting evidence-based content, and raising awareness about specific health issues, risks, and solutions. Over 80% of U.S. State Departments of Health now have a social…

Benefits of Metafile Testing for Central Registries

By Elaine Collins | February 2, 2026

Testing new metafiles is a great opportunity for central registries to participate in the edit process. For standard metafiles, you get to review new edits, find concept and logic errors, comment on their usefulness and impact they might have on your data, and perhaps even suggest other likely edits. For call for data (CFD) metafiles,…

NCCR Winter Feature

By Fernanda Michels | January 26, 2026

The NCCR Feature Winter Edition highlights the NCCR 2025 Accomplishments and promotes the release of the 2025 AACR Pediatric Cancer Progress Report. 2025 NCCR ACCOMPLISHMENTS NCCR Data Platform Updates Imagine having access to comprehensive cancer surveillance data for children, adolescents, and young adults all in one place—linked to real-world evidence that tells the complete story.…

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FCDS Director, Gary Levin, Reflects on 35 Years in Cancer Surveillance

By Stephanie M. Hill, MPH, CTR, NAACCR | January 12, 2026

With his retirement date fast approaching, I asked Gary Levin, long-time director of the Florida Cancer Data System, to reflect…

By Fernanda Michels | January 5, 2026

Advancing Global Collaboration in Childhood Cancer Research: Data Resource Mapping and Federated Network Matrix

By Recinda Sherman, PhD, MPH, ODS-C | December 29, 2025

An Interview with Our New RDU Chair

By Elaine Collins | December 22, 2025

Writing Edits – An Approach for a New Central Registry Edit Writer

By Fernanda Michels | December 15, 2025

Sharing NAACCR Pediatric Cancer Initiatives on Dr. Rick Greene’s Cancer Registry World Podcast

By Jim Hofferkamp, BA, CTR | December 8, 2025

The Importance of Professional Certification for Cancer Registrars

OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

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Benefits of Metafile Testing for Central Registries

By Elaine Collins | February 2, 2026

Testing new metafiles is a great opportunity for central registries to participate in the edit process. For standard metafiles, you…

By Fernanda Michels | January 5, 2026

Advancing Global Collaboration in Childhood Cancer Research: Data Resource Mapping and Federated Network Matrix

By Recinda Sherman, PhD, MPH, ODS-C | December 29, 2025

An Interview with Our New RDU Chair

By Fernanda Michels | December 15, 2025

Sharing NAACCR Pediatric Cancer Initiatives on Dr. Rick Greene’s Cancer Registry World Podcast

By Jim Hofferkamp, BA, CTR | December 8, 2025

The Importance of Professional Certification for Cancer Registrars

By Lucinda Ham, RHIA, ODS-C | October 20, 2025

Nominations Opening Soon for the 2026-2027 Board of Directors

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.

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Jumping on the Social Media Bandwagon; Strategic Planning and Alliances Steering Committee Social Media Campaign

By Monique Hernandez, PhD | February 9, 2026

Social media has become a central, if not a primary vehicle for public health communication and campaigns. It helps with…

By Elaine Collins | February 2, 2026

Benefits of Metafile Testing for Central Registries

By Stephanie M. Hill, MPH, CTR, NAACCR | January 12, 2026

FCDS Director, Gary Levin, Reflects on 35 Years in Cancer Surveillance

By Jim Hofferkamp, BA, CTR | December 8, 2025

The Importance of Professional Certification for Cancer Registrars

By Lucinda Ham, RHIA, ODS-C | October 20, 2025

Nominations Opening Soon for the 2026-2027 Board of Directors

By Jim Hofferkamp, BA, CTR | September 1, 2025

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