VPR in the News

By Castine Clerkin, MS, CTR | August 21, 2024

The VPR continues to facilitate linkages between existing study cohorts and high-quality registry data for ascertaining cancer outcomes among study participants. To date in 2024, seven linkages have occurred, and seven additional studies are in the queue. The VPR has experienced a great deal of growth and success since its infancy, thanks to the contributions…

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Assessing the Completeness of Key Data Items Across NCCR Registries for Pediatric and Adult Cancer Cases

By Fernanda Michels | August 12, 2024

The National Childhood Cancer Registry (NCCR) was developed under the National Cancer Institute’s Childhood Cancer Data Initiative (CCDI)  to identify and follow childhood cancer cases in the U.S. Its primary goal is to provide a platform to better understand the causes, outcomes, effective treatments, and late effects of cancer among children, adolescents, and young adults…

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Your Voice Matters: Upcoming Public Comment Periods on US Health IT Standards

By Karen Knight | August 8, 2024

The U.S. Office of the National Coordinator for Health Information Technology (ONC) published two policy documents that will be of interest to the cancer surveillance community. Both have open public comment periods for 60 days after publication. Health Data, Technology, and Interoperability: Patient Engagement, Information Sharing, and Public Health Interoperability (HTI-2) Proposed Rule A draft…

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TCR Investigates Early-Onset Cancer Trends

By Paige Miller | May 12, 2025

Evaluation of Trends In the Spring of 2024, the Texas Department of State Health Services (DSHS) leadership informed Texas Cancer Registry (TCR) staff about a Texas Senate Health and Human Services (HHS) Committee interim hearing on cancer prevention. DSHS leadership was invited to speak about potential increasing rates of cancer diagnoses among younger Texans. Cancer…

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What’s new for v26?

By Lori Havener, CTR | May 5, 2025

Changes to data collection standards, registry operations, and cancer registry software products impact hospital registrars, central registries, standard setting agencies, and cancer registry software vendors. Timely implementation of these changes is essential to the cancer surveillance community. The Mid-Level Tactical Group (MLTG) is responsible for monitoring the change management process and ensuring timely implementation. All…

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New NAACCR Pediatric Resources Webpage!

By Fernanda Michels | April 28, 2025

NAACCR is excited to introduce a valuable new tool to support pediatric and AYA (Adolescent and Young Adult) Abstracting: the Pediatric Resources Webpage. This initiative is part of our ongoing commitment to expanding pediatric and AYA cancer resources for registrars, researchers, and the broader cancer surveillance community and follows the development of the Pediatric Data…

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President’s Message

By Wendy Aldinger, RHIA CTR | April 21, 2025

Happy Spring! Hopefully things are warming up and starting to bloom in your area. I love the longer days. The…

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By Angela Martin | April 7, 2025

NAACCR Education and Training Upcoming Events

By Mignon Dryden, CTR | March 31, 2025

Liaison Update: College of American Pathologists (CAP) PERT

By Elaine Collins | March 24, 2025

Under the Hood of the NAACCR Call For Data Edits Metafile

By Castine Clerkin, MS, CTR | March 17, 2025

New VPR Registries and Initiatives

By Fernanda Michels | March 3, 2025

“Making the Case for an International Childhood Cancer Data Partnership” paper published!

OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

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What’s new for v26?

By Lori Havener, CTR | May 5, 2025

Changes to data collection standards, registry operations, and cancer registry software products impact hospital registrars, central registries, standard setting agencies,…

Read More >
By Fernanda Michels | April 28, 2025

New NAACCR Pediatric Resources Webpage!

By Elaine Collins | March 24, 2025

Under the Hood of the NAACCR Call For Data Edits Metafile

By Fernanda Michels | March 3, 2025

“Making the Case for an International Childhood Cancer Data Partnership” paper published!

By Stephanie M. Hill, MPH, CTR, NAACCR | February 18, 2025

NAACCR Welcomes Ashley Knealing

By Recinda Sherman, PhD, MPH, ODS-C | February 17, 2025

NAACCR Kicks Off RDU Epi ‘Hour’

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.

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Member News

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President’s Message

By Wendy Aldinger, RHIA CTR | April 21, 2025

Happy Spring! Hopefully things are warming up and starting to bloom in your area. I love the longer days. The…

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By Recinda Sherman, PhD, MPH, ODS-C | February 17, 2025

NAACCR Kicks Off RDU Epi ‘Hour’

By Barbara Dearmon-Neyland | January 27, 2025

Using Social Media to Promote the Role of a Cancer Registrar

By Wendy Aldinger, RHIA CTR | January 13, 2025

President’s Message

By Recinda Sherman, PhD, MPH, ODS-C | December 23, 2024

An Interview with the RDU Chairs

By Elaine Collins | December 16, 2024

Edit Sets: What They Are, How They Are Used, and What’s New for v25A