CBTRUS and Cancer Registries: 35 Years of Collaboration

By Carol Kruchko | October 27, 2025

We couldn’t have done it without you! This sums up our relationship with the surveillance community, its stakeholders, and its supporting community. For over 35 years, the Central Brain Tumor Registry of the United States (CBTRUS) has worked with you to quantify the burden of brain and other central nervous system (CNS) tumors on the…

Nominations Opening Soon for the 2026-2027 Board of Directors

By Lucinda Ham, RHIA, ODS-C | October 20, 2025

The Nominating Committee is seeking nominees to run for election to three key leadership roles on the NAACCR Board of Directors, with terms beginning June 2026, as well as candidates for the 2026-2027 Nominating Committee. The NAACCR membership will cast ballots for the following positions: President-Elect. Four-year commitment: one year as President-Elect, two years as…

New Study Highlights Enrollment Disparities in Children’s Oncology Group (COG) Trials Using NCCR Data

By Fernanda Michels | October 13, 2025

A new study published in the Journal of the National Cancer Institute (JNCI) examines the factors contributing to enrollment discrepancies in clinical trials run by the Children’s Oncology Group (COG). Researchers analyzed data linkages between the National Childhood Cancer Registry (NCCR) and COG trial data in order to identify which populations of children with cancer…

Looking to the Future: Changes Approved for 2027 NAACCR Data Standards

By Stephanie M. Hill, MPH, CTR, NAACCR | April 13, 2026

As we move into Spring, many cancer registries are preparing to begin 2026 abstracting, but registry standard setters are already looking ahead to 2027 – and beyond! The High-Level Strategic Group (HLSG) voted last month on changes to the NAACCR Data Standards and Data Dictionary (Standards) for use beginning with the 2027 diagnosis year (NAACCR v27). NAACCR…

NAACCR CPR Guidelines to be Incorporated into HL7 LRI Implementation Guide

By Ashley Knealing | April 6, 2026

The NAACCR Cancer Pathology Reporting (CPR) Guidelines – also known as Laboratory Electronic Pathology Reporting Guidelines Volume V – are being incorporated into HL7’s Laboratory Reporting Interface (LRI) Implementation Guide through the May 2026 HL7 ballot process. This effort is led by Sandy Jones (contractor) in collaboration with NAACCR’s CPR workgroup. HL7’s LRI is a…

Radiation Exposure Compensation Act and Cancer Registries

By Randi Rycroft, MSPH, ODS-C | March 30, 2026

The Radiation Exposure Compensation Act (RECA) is a program operated by the U.S. Department of Justice (DOJ) Civil Division. This restitution program has existed for many years, and our colleagues in several states are probably already familiar with RECA. For years, the RECA program has compensated individuals affected by radiation exposure under three specific categories:…

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How NAACCR’s Professional Development Steering Committee Advances Training, Mentorship, and Workforce Growth

By Angela Martin | March 23, 2026

Strengthening Cancer Registry Professionals: The Work of the NAACCR Professional Development Steering Committee Leadership, Collaboration, and Growth in Cancer Surveillance…

By Lucinda Ham, RHIA, ODS-C | March 17, 2026

2026 NAACCR Board of Directors Election Results

By Keisha Musonda, MPH | March 16, 2026

TCR data inform the Texas Cancer Plan

By Fernanda Michels | February 23, 2026

CONCORD*Explorer is now available! Access and Download Global Childhood Cancer Survival Estimates

By Angela Martin | February 16, 2026

NAACCR Education and Training Upcoming Events

By Monique Hernandez, PhD | February 9, 2026

Jumping on the Social Media Bandwagon; Strategic Planning and Alliances Steering Committee Social Media Campaign

OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

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Looking to the Future: Changes Approved for 2027 NAACCR Data Standards

By Stephanie M. Hill, MPH, CTR, NAACCR | April 13, 2026

As we move into Spring, many cancer registries are preparing to begin 2026 abstracting, but registry standard setters are already…

By Ashley Knealing | April 6, 2026

NAACCR CPR Guidelines to be Incorporated into HL7 LRI Implementation Guide

By Angela Martin | March 23, 2026

How NAACCR’s Professional Development Steering Committee Advances Training, Mentorship, and Workforce Growth

By Fernanda Michels | February 23, 2026

CONCORD*Explorer is now available! Access and Download Global Childhood Cancer Survival Estimates

By Elaine Collins | February 2, 2026

Benefits of Metafile Testing for Central Registries

By Fernanda Michels | January 5, 2026

Advancing Global Collaboration in Childhood Cancer Research: Data Resource Mapping and Federated Network Matrix

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.

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NAACCR CPR Guidelines to be Incorporated into HL7 LRI Implementation Guide

By Ashley Knealing | April 6, 2026

The NAACCR Cancer Pathology Reporting (CPR) Guidelines – also known as Laboratory Electronic Pathology Reporting Guidelines Volume V – are…

By Lucinda Ham, RHIA, ODS-C | March 17, 2026

2026 NAACCR Board of Directors Election Results

By Keisha Musonda, MPH | March 16, 2026

TCR data inform the Texas Cancer Plan

By Monique Hernandez, PhD | February 9, 2026

Jumping on the Social Media Bandwagon; Strategic Planning and Alliances Steering Committee Social Media Campaign

By Elaine Collins | February 2, 2026

Benefits of Metafile Testing for Central Registries

By Stephanie M. Hill, MPH, CTR, NAACCR | January 12, 2026

FCDS Director, Gary Levin, Reflects on 35 Years in Cancer Surveillance