Operations at the Brazilian Populational-Based Cancer Registry, São Paulo City: A Conversation with Fernanda Michels

By Fernanda Michels | September 15, 2025

NAACCR Associate Director, Stephanie Hill, sat down with NAACCR Program Manager for Data Quality and Integration, Dr. Fernanda Michels, to talk about how she became involved in the international cancer registry community and how it’s shaped her work in cancer surveillance. Stephanie Hill: In your role at NAACCR, you do a lot of work with…

Data Sharing Practices in U.S. Cancer Registry: Results of NAACCR Survey

By Castine Clerkin, MS, CTR | September 8, 2025

In May 2026, NAACCR conducted a survey of U.S. registries to better understand the variation in data release practices. Forty-one registries responded to the survey (76% response rate) and data was analyzed by Betsy Kohler, in her role as consultant to NAACCR. The survey included questions about the primary data release to studies approved by…

Helping Vendors Help You

By Jim Hofferkamp, BA, CTR | September 1, 2025

Timely implementation of hospital registry software is essential for seamless data transmission and high-quality cancer surveillance. When software delays occur at the hospital level, the effects ripple throughout the cancer surveillance system, creating unnecessary challenges for central registries. Effective collaboration between central registries and hospital software vendors can minimize disruptions and support a stronger data…

Now Available CONCORD*Explorer! Access Global Childhood Cancer Survival Data

By Fernanda Michels | February 23, 2026

We are delighted to let you know that CONCORD*Explorer is now live on the NCI website! This is a new collaboration between the Cancer Survival Group in London, the SEER program at the National Cancer Institute, with support from the North American Association of Central Cancer Registries (NAACCR) and Information Management Services, Inc. (IMS). CONCORD*Explorer…

NAACCR Education and Training Upcoming Events

By Angela Martin | February 16, 2026

NAACCR ODS Exam Prep and Review The NAACCR ODS Exam Prep and Review series is offered prior to each exam (Spring, Summer, Fall). The Spring 2026 ODS Exam Prep and Review series has started but you can still register. The series is $260 per participant. For more information and to register for the Spring session…

Jumping on the Social Media Bandwagon; Strategic Planning and Alliances Steering Committee Social Media Campaign

By Monique Hernandez, PhD | February 9, 2026

Social media has become a central, if not a primary vehicle for public health communication and campaigns. It helps with reaching a broader audience, promoting health literacy, countering misinformation through posting evidence-based content, and raising awareness about specific health issues, risks, and solutions. Over 80% of U.S. State Departments of Health now have a social…

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.