NCI Launches Innovative New Platform for Comprehensive Childhood Cancer Data

By Fernanda Michels | December 30, 2024

The National Cancer Institute Surveillance Research Program announced the launch of the latest product to come out of the National Childhood Cancer Registry (NCCR), a collaborative effort of NCI, NAACCR, and 28 central cancer registries. The NCCR Data Platform includes data from individuals diagnosed with an initial cancer under age 40 from 1995 to 2021…

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An Interview with the RDU Chairs

By Recinda Sherman, PhD, MPH, ODS-C | December 23, 2024

When I worked in central cancer registries, my NAACCR network kept me inspired both personally and professionally. One of the benefits of being NAACCR staff is that my NAACCR network grew and continues to motivate and guide me. I view these member ties as the biggest perk in our field, and these collegiate connections are…

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Edit Sets: What They Are, How They Are Used, and What’s New for v25A

By Elaine Collins | December 16, 2024

Standardized edit sets are a critical part of ensuring cancer registry data quality. At the last count, the NAACCR Edits Metafile contained 2,732 edits. Many of these edits are meant to work together (for example, one edit checks for valid values and another ensures the field is either blank or not blank based on standard…

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Secondary data sharing: What is it, why is it important, and how is NAACCR involved?

By Castine Clerkin, MS, CTR | June 30, 2025

Secondary data sharing (SDS) occurs when a primary researcher shares data with a secondary researcher to advance science. Sometimes the shared data may contain information obtained from the cancer registry (e.g., through approved linkage requests). The NIH Data Management and Sharing Policy, published in 2003 and updated in 2023, requires that NIH-funded studies participate in…

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Reflections on the 2025 Annual Conference

By Karen Knight | June 23, 2025

Karen Knight, Executive Director of NAACCR, shares her reflections from the conference, with a call to leadership and working together during uncertain times. Having returned home from the 2025 Annual Conference in Hartford, CT, my heart is full of gratitude for this amazing community and my mind is full of new ideas, challenges and opportunities.…

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2025 NAACCR Board of Directors Election Results

By Mona Highsmith, BA | June 16, 2025

The NAACCR Nominating Committee is charged with encouraging volunteers to consider serving on the NAACCR Board of Directors and to accept eligible nominations for Board elections. For 2025, there were four key leadership roles on the Board of Directors to be filled: Treasurer and three Representatives-at-Large. Additionally, this year’s general election selected three individuals for…

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Call for Subject Matter Experts: Help Develop Central Registry Training!

By Jim Hofferkamp, BA, CTR | May 26, 2025

The NAACCR Professional Development Steering Committee’s Upkeep Work Group is developing a series of 14–15 online training modules to support…

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By Xiao-Cheng Wu | May 19, 2025

Louisiana Amends Cancer Reporting Law and Modernizes Framework

By Paige Miller | May 12, 2025

TCR Investigates Early-Onset Cancer Trends

By Lori Havener, CTR | May 5, 2025

What’s new for v26?

By Fernanda Michels | April 28, 2025

New NAACCR Pediatric Resources Webpage!

By Wendy Aldinger, RHIA CTR | April 21, 2025

President’s Message

OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

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Reflections on the 2025 Annual Conference

By Karen Knight | June 23, 2025

Karen Knight, Executive Director of NAACCR, shares her reflections from the conference, with a call to leadership and working together…

Read More >
By Lori Havener, CTR | May 5, 2025

What’s new for v26?

By Fernanda Michels | April 28, 2025

New NAACCR Pediatric Resources Webpage!

By Elaine Collins | March 24, 2025

Under the Hood of the NAACCR Call For Data Edits Metafile

By Fernanda Michels | March 3, 2025

“Making the Case for an International Childhood Cancer Data Partnership” paper published!

By Stephanie M. Hill, MPH, CTR, NAACCR | February 18, 2025

NAACCR Welcomes Ashley Knealing

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.

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Member News

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2025 NAACCR Board of Directors Election Results

By Mona Highsmith, BA | June 16, 2025

The NAACCR Nominating Committee is charged with encouraging volunteers to consider serving on the NAACCR Board of Directors and to…

Read More >
By Jim Hofferkamp, BA, CTR | May 26, 2025

Call for Subject Matter Experts: Help Develop Central Registry Training!

By Wendy Aldinger, RHIA CTR | April 21, 2025

President’s Message

By Recinda Sherman, PhD, MPH, ODS-C | February 17, 2025

NAACCR Kicks Off RDU Epi ‘Hour’

By Barbara Dearmon-Neyland | January 27, 2025

Using Social Media to Promote the Role of a Cancer Registrar

By Wendy Aldinger, RHIA CTR | January 13, 2025

President’s Message