New Study Highlights Enrollment Disparities in Children’s Oncology Group (COG) Trials Using NCCR Data

By Fernanda Michels | October 13, 2025

A new study published in the Journal of the National Cancer Institute (JNCI) examines the factors contributing to enrollment discrepancies in clinical trials run by the Children’s Oncology Group (COG). Researchers analyzed data linkages between the National Childhood Cancer Registry (NCCR) and COG trial data in order to identify which populations of children with cancer…

CaRDO: A new tool for publishing population-level cancer statistics online.

By Peter Baade | October 6, 2025

Population-based cancer registries play a vital role in collecting high-quality data on newly diagnosed cancers. But it’s equally important to ensure that these data are clearly communicated to policymakers, healthcare professionals, and the public – not only so cancer control efforts and public health priorities are guided by the best available evidence, but also that…

NAACCR Initiatives Supporting Pediatric and AYA Cancer Research

By Fernanda Michels | September 29, 2025

September is Childhood Cancer Awareness Month, a time to recognize the impact of pediatric, adolescent and young adult (AYA) cancers and to highlight the importance of high-quality data in advancing research and improving outcomes. NAACCR is proud to share several ongoing initiatives that support pediatric and AYA cancer surveillance and research. The NAACCR Pediatric SSDI…

Radiation Exposure Compensation Act and Cancer Registries

By Randi Rycroft, MSPH, ODS-C | March 30, 2026

The Radiation Exposure Compensation Act (RECA) is a program operated by the U.S. Department of Justice (DOJ) Civil Division. This restitution program has existed for many years, and our colleagues in several states are probably already familiar with RECA. For years, the RECA program has compensated individuals affected by radiation exposure under three specific categories:…

How NAACCR’s Professional Development Steering Committee Advances Training, Mentorship, and Workforce Growth

By Angela Martin | March 23, 2026

Strengthening Cancer Registry Professionals: The Work of the NAACCR Professional Development Steering Committee Leadership, Collaboration, and Growth in Cancer Surveillance Empowering the NAACCR Community The North American Association of Central Cancer Registries (NAACCR) relies on the expertise and dedication of its members to advance cancer surveillance. At the heart of this effort is the Professional…

2026 NAACCR Board of Directors Election Results

By Lucinda Ham, RHIA, ODS-C | March 17, 2026

The NAACCR Nominating Committee is charged with encouraging volunteers to consider serving on the NAACCR Board of Directors and to accept eligible nominations for Board elections. For 2026, there were four key leadership roles on the Board of Director to be filled: President and three Representatives-at-Large. Additionally, this year’s general election selected three new individuals…

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.