TCR Investigates Early-Onset Cancer Trends

By Paige Miller | May 12, 2025

Evaluation of Trends In the Spring of 2024, the Texas Department of State Health Services (DSHS) leadership informed Texas Cancer Registry (TCR) staff about a Texas Senate Health and Human Services (HHS) Committee interim hearing on cancer prevention. DSHS leadership was invited to speak about potential increasing rates of cancer diagnoses among younger Texans. Cancer…

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What’s new for v26?

By Lori Havener, CTR | May 5, 2025

Changes to data collection standards, registry operations, and cancer registry software products impact hospital registrars, central registries, standard setting agencies, and cancer registry software vendors. Timely implementation of these changes is essential to the cancer surveillance community. The Mid-Level Tactical Group (MLTG) is responsible for monitoring the change management process and ensuring timely implementation. All…

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New NAACCR Pediatric Resources Webpage!

By Fernanda Michels | April 28, 2025

NAACCR is excited to introduce a valuable new tool to support pediatric and AYA (Adolescent and Young Adult) Abstracting: the Pediatric Resources Webpage. This initiative is part of our ongoing commitment to expanding pediatric and AYA cancer resources for registrars, researchers, and the broader cancer surveillance community and follows the development of the Pediatric Data…

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Operations at the Brazilian Populational-Based Cancer Registry, São Paulo City: A Conversation with Fernanda Michels

By Fernanda Michels | September 15, 2025

NAACCR Associate Director, Stephanie Hill, sat down with NAACCR Program Manager for Data Quality and Integration, Dr. Fernanda Michels, to talk about how she became involved in the international cancer registry community and how it’s shaped her work in cancer surveillance. Stephanie Hill: In your role at NAACCR, you do a lot of work with…

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Data Sharing Practices in U.S. Cancer Registry: Results of NAACCR Survey

By Castine Clerkin, MS, CTR | September 8, 2025

In May 2026, NAACCR conducted a survey of U.S. registries to better understand the variation in data release practices. Forty-one registries responded to the survey (76% response rate) and data was analyzed by Betsy Kohler, in her role as consultant to NAACCR. The survey included questions about the primary data release to studies approved by…

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Helping Vendors Help You

By Jim Hofferkamp, BA, CTR | September 1, 2025

Timely implementation of hospital registry software is essential for seamless data transmission and high-quality cancer surveillance. When software delays occur at the hospital level, the effects ripple throughout the cancer surveillance system, creating unnecessary challenges for central registries. Effective collaboration between central registries and hospital software vendors can minimize disruptions and support a stronger data…

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.