NAACCR Education and Training Upcoming Events

By Angela Martin | December 2, 2025

  NAACCR ODS Exam Prep and Review The NAACCR ODS Exam Prep and Review series is offered prior to each exam (Spring, Summer, Fall). The Spring 2026 ODS Exam Prep and Review series registration will open December 5, 2025.  Registration for the series is $260 per participant. For more information and to register for the…

Are You Ready for the Central Registry HL7 FHIR Implementation Guide?

By Ashley Knealing | November 24, 2025

Prior to official publication of the Central Cancer Registry Reporting HL7 FHIR Implementation Guide, the cancer registry community will have a chance to weigh in during a public comment period. Are YOU ready?  Join NAACCR on December 4, 2025, at 2:00 PM ET for an informational webinar on the Central Cancer Registry Reporting (CCRR) HL7…

Privacy Preserving Record Linkage (PPRL): Coming Soon to the Virtual Pooled Registry

By Castine Clerkin, MS, CTR | November 10, 2025

The current Virtual Pooled Registry (VPR) workflow requires registries to download an encrypted study data file and perform a clear-text linkage using Personally Identifiable Information (PII). To broaden the scope, and enhance the security of the VPR, NCI has encouraged a transition to Privacy Preserving Record Linkage (PPRL). What is PPRL? PPRL is a technique…

National Childhood Cancer Registry (NCCR) Spring Feature

By Fernanda Michels | April 27, 2026

The NCCR Spring Feature highlights the SEER*Stat Tools Webinar, promotes an NCI Division of Cancer Control and Population Sciences (DCCPS) funding opportunity, and presents usage statistics from the NCCR Data Platform. This edition also features upcoming CCDI webinars, the 2026 NAACCR Conference, and the 2026 NCI Data Jamboree. SEER*Stat Tools Webinar From Data to Discovery:…

Looking to the Future: Changes Approved for 2027 NAACCR Data Standards

By Stephanie M. Hill, MPH, CTR, NAACCR | April 13, 2026

As we move into Spring, many cancer registries are preparing to begin 2026 abstracting, but registry standard setters are already looking ahead to 2027 – and beyond! The High-Level Strategic Group (HLSG) voted last month on changes to the NAACCR Data Standards and Data Dictionary (Standards) for use beginning with the 2027 diagnosis year (NAACCR v27). NAACCR…

NAACCR CPR Guidelines to be Incorporated into HL7 LRI Implementation Guide

By Ashley Knealing | April 6, 2026

The NAACCR Cancer Pathology Reporting (CPR) Guidelines – also known as Laboratory Electronic Pathology Reporting Guidelines Volume V – are being incorporated into HL7’s Laboratory Reporting Interface (LRI) Implementation Guide through the May 2026 HL7 ballot process. This effort is led by Sandy Jones (contractor) in collaboration with NAACCR’s CPR workgroup. HL7’s LRI is a…

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.