NCCR Feature: Highlights of the 2025 NAACCR Annual Conference

By Fernanda Michels | August 11, 2025

The 2025 NAACCR Annual Conference was held in Hartford, CT from June 3-5, 2025. Our theme for this year was, “Honoring the Past, Embracing the Future” as we celebrated the Connecticut Tumor Registry’s 90th anniversary. Two hundred and eighty-eight people attended the conference, and of those, 53 were attending a NAACCR Conference for the first…

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A Practical Guide for Central Registries Updating to a V25B Metafile

By Matthew Mayfield, MS, ODS | August 4, 2025

Abstract The NAACCR V25B metafile brings new standards and logic for cancer data validation. As central registries prepare to implement this version, it is critical to understand the best practices for adopting and customizing the metafile to meet both internal and external needs. This article outlines three primary updates ranging from simple renaming and cleanup…

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Welcome from the incoming NAACCR President, Eric Durbin

By Eric Durbin, DrPH, MS | July 28, 2025

Dear NAACCR members, It is a great honor to serve you and the cancer surveillance community as the incoming NAACCR President. First, heartfelt thanks to our outgoing President, Wendy Aldinger. Through her thoughtful and steady leadership, we have remained true to our mission. I also wish to express my gratitude to NAACCR Executive Director Karen…

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New Study Highlights Enrollment Disparities in Children’s Oncology Group (COG) Trials Using NCCR Data

By Fernanda Michels | October 13, 2025

A new study published in the Journal of the National Cancer Institute (JNCI) examines the factors contributing to enrollment discrepancies in clinical trials run by the Children’s Oncology Group (COG). Researchers analyzed data linkages between the National Childhood Cancer Registry (NCCR) and COG trial data in order to identify which populations of children with cancer…

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CaRDO: A new tool for publishing population-level cancer statistics online.

By Peter Baade | October 6, 2025

Population-based cancer registries play a vital role in collecting high-quality data on newly diagnosed cancers. But it’s equally important to ensure that these data are clearly communicated to policymakers, healthcare professionals, and the public – not only so cancer control efforts and public health priorities are guided by the best available evidence, but also that…

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NAACCR Initiatives Supporting Pediatric and AYA Cancer Research

By Fernanda Michels | September 29, 2025

September is Childhood Cancer Awareness Month, a time to recognize the impact of pediatric, adolescent and young adult (AYA) cancers and to highlight the importance of high-quality data in advancing research and improving outcomes. NAACCR is proud to share several ongoing initiatives that support pediatric and AYA cancer surveillance and research. The NAACCR Pediatric SSDI…

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.