New Study Highlights Enrollment Disparities in Children’s Oncology Group (COG) Trials Using NCCR Data

By Fernanda Michels | October 13, 2025

A new study published in the Journal of the National Cancer Institute (JNCI) examines the factors contributing to enrollment discrepancies in clinical trials run by the Children’s Oncology Group (COG). Researchers analyzed data linkages between the National Childhood Cancer Registry (NCCR) and COG trial data in order to identify which populations of children with cancer…

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CaRDO: A new tool for publishing population-level cancer statistics online.

By Peter Baade | October 6, 2025

Population-based cancer registries play a vital role in collecting high-quality data on newly diagnosed cancers. But it’s equally important to ensure that these data are clearly communicated to policymakers, healthcare professionals, and the public – not only so cancer control efforts and public health priorities are guided by the best available evidence, but also that…

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NAACCR Initiatives Supporting Pediatric and AYA Cancer Research

By Fernanda Michels | September 29, 2025

September is Childhood Cancer Awareness Month, a time to recognize the impact of pediatric, adolescent and young adult (AYA) cancers and to highlight the importance of high-quality data in advancing research and improving outcomes. NAACCR is proud to share several ongoing initiatives that support pediatric and AYA cancer surveillance and research. The NAACCR Pediatric SSDI…

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Writing Edits – An Approach for a New Central Registry Edit Writer

By Elaine Collins | December 22, 2025

Introduction Data relationships, electronic formatting, logical viewpoint – all come together in edits to support the collection of useful cancer information. The edits in the standard metafile realize standards that apply to data collected at the national level, but the same edit tools and processes are available to central registries to manage additional local data…

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Sharing NAACCR Pediatric Cancer Initiatives on Dr. Rick Greene’s Cancer Registry World Podcast

By Fernanda Michels | December 15, 2025

I am excited to share that I was recently interviewed by Dr. Rick Greene for his Cancer Registry World podcast. It was a great opportunity to share my path into cancer surveillance and to highlight the pediatric work we are advancing through NAACCR. In the episode, I discussed several initiatives within the National Childhood Cancer…

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The Importance of Professional Certification for Cancer Registrars

By Jim Hofferkamp, BA, CTR | December 8, 2025

Professional certification plays a vital role in strengthening the cancer registry workforce and ensuring the high-quality data that is essential for cancer surveillance, research, and public health planning. For cancer registrars, achieving certification demonstrates a thorough understanding of cancer registry operations, data standards, and coding principles. It reflects an individual’s commitment to excellence and provides…

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NAACCR Education and Training Upcoming Events

By Angela Martin | December 2, 2025

  NAACCR ODS Exam Prep and Review The NAACCR ODS Exam Prep and Review series is offered prior to each…

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By Ashley Knealing | November 24, 2025

Are You Ready for the Central Registry HL7 FHIR Implementation Guide?

By Castine Clerkin, MS, CTR | November 10, 2025

Privacy Preserving Record Linkage (PPRL): Coming Soon to the Virtual Pooled Registry

By Fernanda Michels | November 3, 2025

NCCR Fall Feature

By Carol Kruchko | October 27, 2025

CBTRUS and Cancer Registries: 35 Years of Collaboration

By Lucinda Ham, RHIA, ODS-C | October 20, 2025

Nominations Opening Soon for the 2026-2027 Board of Directors

OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

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Sharing NAACCR Pediatric Cancer Initiatives on Dr. Rick Greene’s Cancer Registry World Podcast

By Fernanda Michels | December 15, 2025

I am excited to share that I was recently interviewed by Dr. Rick Greene for his Cancer Registry World podcast.…

Read More >
By Jim Hofferkamp, BA, CTR | December 8, 2025

The Importance of Professional Certification for Cancer Registrars

By Lucinda Ham, RHIA, ODS-C | October 20, 2025

Nominations Opening Soon for the 2026-2027 Board of Directors

By Fernanda Michels | October 13, 2025

New Study Highlights Enrollment Disparities in Children’s Oncology Group (COG) Trials Using NCCR Data

By Fernanda Michels | September 29, 2025

NAACCR Initiatives Supporting Pediatric and AYA Cancer Research

By Fernanda Michels | September 15, 2025

Operations at the Brazilian Populational-Based Cancer Registry, São Paulo City: A Conversation with Fernanda Michels

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.

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Member News

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The Importance of Professional Certification for Cancer Registrars

By Jim Hofferkamp, BA, CTR | December 8, 2025

Professional certification plays a vital role in strengthening the cancer registry workforce and ensuring the high-quality data that is essential…

Read More >
By Lucinda Ham, RHIA, ODS-C | October 20, 2025

Nominations Opening Soon for the 2026-2027 Board of Directors

By Jim Hofferkamp, BA, CTR | September 1, 2025

Helping Vendors Help You

By Matthew Mayfield, MS, ODS | August 4, 2025

A Practical Guide for Central Registries Updating to a V25B Metafile

By Angela Martin | July 21, 2025

NAACCR Education and Training Upcoming Events

By Lori Havener, CTR | July 7, 2025

Standardization and Registry Development Steering Committee: Modular Records Task Force