Are You Ready for the Central Registry HL7 FHIR Implementation Guide?

By Ashley Knealing | November 24, 2025

Prior to official publication of the Central Cancer Registry Reporting HL7 FHIR Implementation Guide, the cancer registry community will have a chance to weigh in during a public comment period. Are YOU ready?  Join NAACCR on December 4, 2025, at 2:00 PM ET for an informational webinar on the Central Cancer Registry Reporting (CCRR) HL7…

Privacy Preserving Record Linkage (PPRL): Coming Soon to the Virtual Pooled Registry

By Castine Clerkin, MS, CTR | November 10, 2025

The current Virtual Pooled Registry (VPR) workflow requires registries to download an encrypted study data file and perform a clear-text linkage using Personally Identifiable Information (PII). To broaden the scope, and enhance the security of the VPR, NCI has encouraged a transition to Privacy Preserving Record Linkage (PPRL). What is PPRL? PPRL is a technique…

NCCR Fall Feature

By Fernanda Michels | November 3, 2025

The NCCR Fall Feature highlights key advancements and initiatives within the NCCR community, including highlights on the inaugural Data Jamboree, new study on clinical trial enrollment disparity using NCCR data, recent updates to NCCR*Explorer and SEER*Stat tools, and important upcoming deadline for NCCR registry participants Call for Data. Data Jamboree: Enhancing Childhood Cancer Data Sharing…

Benefits of Metafile Testing for Central Registries

By Elaine Collins | February 2, 2026

Testing new metafiles is a great opportunity for central registries to participate in the edit process. For standard metafiles, you get to review new edits, find concept and logic errors, comment on their usefulness and impact they might have on your data, and perhaps even suggest other likely edits. For call for data (CFD) metafiles,…

NCCR Winter Feature

By Fernanda Michels | January 26, 2026

The NCCR Feature Winter Edition highlights the NCCR 2025 Accomplishments and promotes the release of the 2025 AACR Pediatric Cancer Progress Report. 2025 NCCR ACCOMPLISHMENTS NCCR Data Platform Updates Imagine having access to comprehensive cancer surveillance data for children, adolescents, and young adults all in one place—linked to real-world evidence that tells the complete story.…

FCDS Director, Gary Levin, Reflects on 35 Years in Cancer Surveillance

By Stephanie M. Hill, MPH, CTR, NAACCR | January 12, 2026

With his retirement date fast approaching, I asked Gary Levin, long-time director of the Florida Cancer Data System, to reflect on his 35 years in the cancer surveillance field. Gary was a 2025 recipient of the Calum S. Muir Memorial Award in recognition of his leadership and service to NAACCR and for the promotion of…

Browse Sections

Featured Articles

View All

Advancing Global Collaboration in Childhood Cancer Research: Data Resource Mapping and Federated Network Matrix

By Fernanda Michels | January 5, 2026

In November 2023, the US National Cancer Institute (NCI) (with support from NAACCR) and the French National Cancer Institute (INCa)…

By Recinda Sherman, PhD, MPH, ODS-C | December 29, 2025

An Interview with Our New RDU Chair

By Elaine Collins | December 22, 2025

Writing Edits – An Approach for a New Central Registry Edit Writer

By Fernanda Michels | December 15, 2025

Sharing NAACCR Pediatric Cancer Initiatives on Dr. Rick Greene’s Cancer Registry World Podcast

By Jim Hofferkamp, BA, CTR | December 8, 2025

The Importance of Professional Certification for Cancer Registrars

By Angela Martin | December 2, 2025

NAACCR Education and Training Upcoming Events

OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

Association

View All

Benefits of Metafile Testing for Central Registries

By Elaine Collins | February 2, 2026

Testing new metafiles is a great opportunity for central registries to participate in the edit process. For standard metafiles, you…

By Fernanda Michels | January 5, 2026

Advancing Global Collaboration in Childhood Cancer Research: Data Resource Mapping and Federated Network Matrix

By Recinda Sherman, PhD, MPH, ODS-C | December 29, 2025

An Interview with Our New RDU Chair

By Fernanda Michels | December 15, 2025

Sharing NAACCR Pediatric Cancer Initiatives on Dr. Rick Greene’s Cancer Registry World Podcast

By Jim Hofferkamp, BA, CTR | December 8, 2025

The Importance of Professional Certification for Cancer Registrars

By Lucinda Ham, RHIA, ODS-C | October 20, 2025

Nominations Opening Soon for the 2026-2027 Board of Directors

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.

Dive Deeper >

Member News

View All

Benefits of Metafile Testing for Central Registries

By Elaine Collins | February 2, 2026

Testing new metafiles is a great opportunity for central registries to participate in the edit process. For standard metafiles, you…

By Stephanie M. Hill, MPH, CTR, NAACCR | January 12, 2026

FCDS Director, Gary Levin, Reflects on 35 Years in Cancer Surveillance

By Jim Hofferkamp, BA, CTR | December 8, 2025

The Importance of Professional Certification for Cancer Registrars

By Lucinda Ham, RHIA, ODS-C | October 20, 2025

Nominations Opening Soon for the 2026-2027 Board of Directors

By Jim Hofferkamp, BA, CTR | September 1, 2025

Helping Vendors Help You

By Matthew Mayfield, MS, ODS | August 4, 2025

A Practical Guide for Central Registries Updating to a V25B Metafile