NAACCR Education and Training Upcoming Events

By Angela Martin | September 22, 2025

Check out all the education and training resources NAACCR has to offer! NAACCR ODS Exam Prep and Review The Fall 2025 ODS Exam Prep and Review Webinar Series is now in session! For more information and to register for the Fall session go to https://education.naaccr.org/CTR. The NAACCR ODS Exam Prep and Review series is offered…

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Operations at the Brazilian Populational-Based Cancer Registry, São Paulo City: A Conversation with Fernanda Michels

By Fernanda Michels | September 15, 2025

NAACCR Associate Director, Stephanie Hill, sat down with NAACCR Program Manager for Data Quality and Integration, Dr. Fernanda Michels, to talk about how she became involved in the international cancer registry community and how it’s shaped her work in cancer surveillance. Stephanie Hill: In your role at NAACCR, you do a lot of work with…

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Data Sharing Practices in U.S. Cancer Registry: Results of NAACCR Survey

By Castine Clerkin, MS, CTR | September 8, 2025

In May 2026, NAACCR conducted a survey of U.S. registries to better understand the variation in data release practices. Forty-one registries responded to the survey (76% response rate) and data was analyzed by Betsy Kohler, in her role as consultant to NAACCR. The survey included questions about the primary data release to studies approved by…

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New Study Highlights Enrollment Disparities in Children’s Oncology Group (COG) Trials Using NCCR Data

By Fernanda Michels | October 13, 2025

A new study published in the Journal of the National Cancer Institute (JNCI) examines the factors contributing to enrollment discrepancies in clinical trials run by the Children’s Oncology Group (COG). Researchers analyzed data linkages between the National Childhood Cancer Registry (NCCR) and COG trial data in order to identify which populations of children with cancer…

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CaRDO: A new tool for publishing population-level cancer statistics online.

By Peter Baade | October 6, 2025

Population-based cancer registries play a vital role in collecting high-quality data on newly diagnosed cancers. But it’s equally important to ensure that these data are clearly communicated to policymakers, healthcare professionals, and the public – not only so cancer control efforts and public health priorities are guided by the best available evidence, but also that…

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NAACCR Initiatives Supporting Pediatric and AYA Cancer Research

By Fernanda Michels | September 29, 2025

September is Childhood Cancer Awareness Month, a time to recognize the impact of pediatric, adolescent and young adult (AYA) cancers and to highlight the importance of high-quality data in advancing research and improving outcomes. NAACCR is proud to share several ongoing initiatives that support pediatric and AYA cancer surveillance and research. The NAACCR Pediatric SSDI…

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.