Are You Ready for the Central Registry HL7 FHIR Implementation Guide?

By Ashley Harvieux | November 24, 2025

Prior to official publication of the Central Cancer Registry Reporting HL7 FHIR Implementation Guide, the cancer registry community will have a chance to weigh in during a public comment period. Are YOU ready?  Join NAACCR on December 4, 2025, at 2:00 PM ET for an informational webinar on the Central Cancer Registry Reporting (CCRR) HL7…

Privacy Preserving Record Linkage (PPRL): Coming Soon to the Virtual Pooled Registry

By Castine Clerkin, MS, CTR | November 10, 2025

The current Virtual Pooled Registry (VPR) workflow requires registries to download an encrypted study data file and perform a clear-text linkage using Personally Identifiable Information (PII). To broaden the scope, and enhance the security of the VPR, NCI has encouraged a transition to Privacy Preserving Record Linkage (PPRL). What is PPRL? PPRL is a technique…

NCCR Fall Feature

By Fernanda Michels | November 3, 2025

The NCCR Fall Feature highlights key advancements and initiatives within the NCCR community, including highlights on the inaugural Data Jamboree, new study on clinical trial enrollment disparity using NCCR data, recent updates to NCCR*Explorer and SEER*Stat tools, and important upcoming deadline for NCCR registry participants Call for Data. Data Jamboree: Enhancing Childhood Cancer Data Sharing…

NAACCR Board Identifies Priority Areas to Propel NAACCR Into the Future

By Eric Durbin, DrPH, MS | September 28, 2026

Priority Areas to Propel NAACCR Into the Future Central cancer registries should expect to benefit from sweeping, transformative new capabilities in electronic health records (EHR), biomedical informatics, and artificial intelligence (AI). As the cancer data ecosystem advances, central cancer registries will need to be prepared and empowered to leverage these advances for better, faster, more…

NAACCR Education and Training Upcoming Events

By Angela Martin | September 28, 2026

NAACCR ODS Exam Prep and Review The Fall 2026 Session of the NAACCR ODS Exam Prep and Review webinar series has started! You can still register. The series is $260 per participant. For more information go to https://education.naaccr.org/CTR. Contact Angela Martin, if you have any questions. NAACCR Monthly Webinar Series For the upcoming NAACCR 2026-2027…

Using Median/Multiple Outlier Testing (MMOT) to Support Central Cancer Registry Operations

By Fernanda Michels | August 3, 2026

Central Cancer Registries continuously strive to improve data quality while ensuring that data are fit for research, surveillance, and cancer control activities. One promising approach is the use of Median/Multiple Outlier Testing (MMOT), a benchmarking method developed by Dr. Huann-Sheng Chen of the National Cancer Institute’s Surveillance Research Program. MMOT helps identify unusual patterns in…

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.