Under the Hood of the NAACCR Call For Data Edits Metafile

By Elaine Collins | March 24, 2025

During the annual Call for Data (CFD), NAACCR receives data from central cancer registries for evaluation, certification, and publication. To support the CFD and to assist the central registries in preparing the data, NAACCR releases a special Call for Data edit metafile, separate from the standard edit metafile that central registries use throughout the year…

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New VPR Registries and Initiatives

By Castine Clerkin, MS, CTR | March 17, 2025

We are excited to announce that Minnesota has joined the Virtual Pooled Registry (VPR) initiative and is currently performing their first linkage. Nevada has also rejoined the VPR after a brief hiatus. This brings the number of VPR registries to 47, representing 96% of the U.S. population. A big thank you to all the participating…

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“Making the Case for an International Childhood Cancer Data Partnership” paper published!

By Fernanda Michels | March 3, 2025

Following the 2023 Paris Conference for an International Childhood Cancer Data Partnership, a collaboration of the U.S. National Cancer Institute (NCI), the French National Cancer Institute (INCa), and NAACCR, I am pleased to share an exciting new development. A scientific paper titled, Making the Case for an International Childhood Cancer Data Partnership, authored by Gonçalo…

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CBTRUS and Cancer Registries: 35 Years of Collaboration

By Carol Kruchko | October 27, 2025

We couldn’t have done it without you! This sums up our relationship with the surveillance community, its stakeholders, and its supporting community. For over 35 years, the Central Brain Tumor Registry of the United States (CBTRUS) has worked with you to quantify the burden of brain and other central nervous system (CNS) tumors on the…

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Nominations Opening Soon for the 2026-2027 Board of Directors

By Lucinda Ham, RHIA, ODS-C | October 20, 2025

The Nominating Committee is seeking nominees to run for election to three key leadership roles on the NAACCR Board of Directors, with terms beginning June 2026, as well as candidates for the 2026-2027 Nominating Committee. The NAACCR membership will cast ballots for the following positions: President-Elect. Four-year commitment: one year as President-Elect, two years as…

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New Study Highlights Enrollment Disparities in Children’s Oncology Group (COG) Trials Using NCCR Data

By Fernanda Michels | October 13, 2025

A new study published in the Journal of the National Cancer Institute (JNCI) examines the factors contributing to enrollment discrepancies in clinical trials run by the Children’s Oncology Group (COG). Researchers analyzed data linkages between the National Childhood Cancer Registry (NCCR) and COG trial data in order to identify which populations of children with cancer…

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OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.