New NAACCR Pediatric Resources Webpage!

By Fernanda Michels | April 28, 2025

NAACCR is excited to introduce a valuable new tool to support pediatric and AYA (Adolescent and Young Adult) Abstracting: the Pediatric Resources Webpage. This initiative is part of our ongoing commitment to expanding pediatric and AYA cancer resources for registrars, researchers, and the broader cancer surveillance community and follows the development of the Pediatric Data…

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President’s Message

By Wendy Aldinger, RHIA CTR | April 21, 2025

Happy Spring! Hopefully things are warming up and starting to bloom in your area. I love the longer days. The NAACCR Board and Steering Committee Chairs sprung into action during an in-person meeting the beginning of March in Savannah, GA. As part of the meeting, the Chairs shared their Committees’ accomplishments towards meeting the goals…

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NAACCR Education and Training Upcoming Events

By Angela Martin | April 7, 2025

NAACCR ODS Exam Prep and Review  We will have completed our Spring 2025 ODS Exam Prep session. Good luck to all that are sitting for the ODS Exam in the Spring testing window. The Summer 2025 ODS Exam Prep series registration will be open on April 1, 2025. The NAACCR ODS Exam Prep and Review…

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NAACCR Education and Training Upcoming Events

By Angela Martin | December 2, 2025

  NAACCR ODS Exam Prep and Review The NAACCR ODS Exam Prep and Review series is offered prior to each exam (Spring, Summer, Fall). The Spring 2026 ODS Exam Prep and Review series registration will open December 5, 2025.  Registration for the series is $260 per participant. For more information and to register for the…

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Are You Ready for the Central Registry HL7 FHIR Implementation Guide?

By Ashley Knealing | November 24, 2025

Prior to official publication of the Central Cancer Registry Reporting HL7 FHIR Implementation Guide, the cancer registry community will have a chance to weigh in during a public comment period. Are YOU ready?  Join NAACCR on December 4, 2025, at 2:00 PM ET for an informational webinar on the Central Cancer Registry Reporting (CCRR) HL7…

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Privacy Preserving Record Linkage (PPRL): Coming Soon to the Virtual Pooled Registry

By Castine Clerkin, MS, CTR | November 10, 2025

The current Virtual Pooled Registry (VPR) workflow requires registries to download an encrypted study data file and perform a clear-text linkage using Personally Identifiable Information (PII). To broaden the scope, and enhance the security of the VPR, NCI has encouraged a transition to Privacy Preserving Record Linkage (PPRL). What is PPRL? PPRL is a technique…

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NCCR Fall Feature

By Fernanda Michels | November 3, 2025

The NCCR Fall Feature highlights key advancements and initiatives within the NCCR community, including highlights on the inaugural Data Jamboree,…

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By Carol Kruchko | October 27, 2025

CBTRUS and Cancer Registries: 35 Years of Collaboration

By Lucinda Ham, RHIA, ODS-C | October 20, 2025

Nominations Opening Soon for the 2026-2027 Board of Directors

By Fernanda Michels | October 13, 2025

New Study Highlights Enrollment Disparities in Children’s Oncology Group (COG) Trials Using NCCR Data

By Peter Baade | October 6, 2025

CaRDO: A new tool for publishing population-level cancer statistics online.

By Fernanda Michels | September 29, 2025

NAACCR Initiatives Supporting Pediatric and AYA Cancer Research

OUR MISSION

Actionable content that unites cancer registries.

The Narrative strives to provide you with information you can use to enhance and strengthen your cancer registry. Look to the Narrative for the latest cancer surveillance news, trends, advances in technology, and latest educational opportunities.

OUR VISION

Make every cancer count.

Cancer affects thousands of people across North America every year. Each cancer case must contribute to our knowledge and understanding so that we may reduce the burden of these diseases. Narrative provides a platform for the cancer surveillance community to collaborate and share data that will improve health outcomes.

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Nominations Opening Soon for the 2026-2027 Board of Directors

By Lucinda Ham, RHIA, ODS-C | October 20, 2025

The Nominating Committee is seeking nominees to run for election to three key leadership roles on the NAACCR Board of…

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By Fernanda Michels | October 13, 2025

New Study Highlights Enrollment Disparities in Children’s Oncology Group (COG) Trials Using NCCR Data

By Fernanda Michels | September 29, 2025

NAACCR Initiatives Supporting Pediatric and AYA Cancer Research

By Fernanda Michels | September 15, 2025

Operations at the Brazilian Populational-Based Cancer Registry, São Paulo City: A Conversation with Fernanda Michels

By Jim Hofferkamp, BA, CTR | September 1, 2025

Helping Vendors Help You

By Recinda Sherman, PhD, MPH, ODS-C | August 11, 2025

Now Available! CiNA Statistics Update

CANCER REGISTRY SPOTLIGHT: MICHIGAN

Successful Linkage Between Registry Database and LexisNexis

In our ongoing commitment to enhance the quality and accessibility of data, we are thrilled to announce the successful linkage between our registry database and LexisNexis. This integration represents a significant step forward in streamlining our data processes and expanding our analytical capabilities.

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Member News

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Nominations Opening Soon for the 2026-2027 Board of Directors

By Lucinda Ham, RHIA, ODS-C | October 20, 2025

The Nominating Committee is seeking nominees to run for election to three key leadership roles on the NAACCR Board of…

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By Jim Hofferkamp, BA, CTR | September 1, 2025

Helping Vendors Help You

By Matthew Mayfield, MS, ODS | August 4, 2025

A Practical Guide for Central Registries Updating to a V25B Metafile

By Angela Martin | July 21, 2025

NAACCR Education and Training Upcoming Events

By Lori Havener, CTR | July 7, 2025

Standardization and Registry Development Steering Committee: Modular Records Task Force

By Mona Highsmith, BA | June 16, 2025

2025 NAACCR Board of Directors Election Results