Fall 2022 NAACCR Narrative Leave a comment

NEW FEATURE! Spotlight on Registries

The NAACCR Narrative Editorial Board is introducing a new feature to the Narrative Newsletter. Spotlight on Registries will be a series of articles that highlights a registry’s special activities or achievements. This Edition spotlights the U.S. Affiliated Pacific Island (USAPI) Jurisdictions 2021 NPCR Success Story, describing their successful implementation of FLccSC (Fundamental Learning Collaborative for the Cancer Surveillance Community). Lymona Refugia, CTR, from the Guam Cancer Registry and lead-author on the Success Story spoke with the Narrative recently about their experience.

To see the original 2021 NPCR Success Story, click here.

 

NAACCR Narrative Interviews Lymona Refugia, CTR, Guam Cancer Registry

NAACCR Narrative (NN): You detailed a lot of challenges that the USAPI face compared to typical NPCR registries. What do you think was your greatest challenge in implementing your own FLccSC training website and rapid-reaction Zoom calls?

Ms. Refugia: One of the greatest challenges to implementing our FLccSC was actually just accessing the site. Because we are not physically within the 50 states, accessing the FLssSC site requires us to use a VPN. This in itself is not really an issue, however, when you tie that into the sometimes really slow connection speed within the other jurisdictions, it can be frustrating. We are all learning together how best to utilize FLccSC and I think it will become a great tool not just for our jurisdictions but everyone as well.

With the rapid reaction Zoom calls our greatest challenge is timing. With our jurisdictions spanning 6 different time zones, it can sometimes be hard to find a time that will work for everyone. Another issue that is thankfully less and less relevant is bandwidth. Many of our jurisdiction registrars weren’t able to join Zoom calls with both video and audio on. This has gotten better on the one hand, with the software upgrades on the Zoom platform’s side (lower bandwidth is needed for audio/video), and on the other, islands are able to secure better internet access for their Healthcare/Public Health offices, but there is still room to grow. Jurisdictions can’t dial into Zoom calls because even the 1-800 numbers act as international calls (and callers are charged $$$ for such calls).

NN: What do you think was your greatest success in this implementation?

Ms. Rufugia: Our greatest success with the implementation of FLccSC is something that we actually just launched. We put together an introductory cancer registry crash course, which includes basic registry operations, simple anatomy, basic Excel and what to expect as a registrar. As we are limited in resources, our jurisdictions don’t have the strict requirements that facilities in the US have. We are normally limited in finding individuals who are interested in registry operations (or advanced data entry type of work). With the crash course, we have already had success in having potential registrars learn more about the field and express their interest in joining our registry teams. Aside from the initial connection issues, it seems the response to the site has been positive and it is easy to use.

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