Spring 2021 NAACCR Narrative Leave a comment

NAACCR Completes Two-Year Collaborative Assessment of Registry Operations
In 2019, the Centers for Disease Control and Prevention (CDC) National Program of Cancer Registries (NPCR) contracted with the National Association of Chronic Disease Directors (NACDD), which then subcontracted with NAACCR to identify best practices for registry operations and completeness. NAACCR brought together leading authorities in the field and experienced practitioners to address these issues in a thoughtful and carefully designed two-pronged approach. The project included a multidimensional analysis that involved a systematic statistical review of current and proposed completeness models to determine which might capture the most accurate assessment of completeness. It also encompassed a wide-ranging analysis of registry operations, including electronic pathology reporting, central registry laws and regulations, auto-consolidation, management reports, relationships with hospital and non-hospital reporting facilities, and handling of the COVID-19 pandemic.

Over the course of more than two years, NAACCR convened statistical and operational expert panels and focus groups, conducted interviews and written assessments, facilitated interactive workshops, and performed a Lean Six Sigma analysis of electronic pathology reporting. Thirty-nine central registries participated in one or more of these activities, contributing their time and expertise and making this one of the most robust and comprehensive analyses of its kind in recent years. A report of findings and recommendations was submitted to the NACDD and CDC and presented at a NPCR Town Hall on March 2nd. NAACCR also developed a series of Tip Sheets with steps registries can take that may help them to improve their operations. Both the report and Tip Sheets are expected to be released by NACDD.

NAACCR would like to express its heartfelt thanks and appreciation to all of the participants, students and staff who supported this project over the last 2 years. Your generous support and dedication make this work possible.



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