Fall 2019 NAACCR Narrative Leave a comment

Welcome to the Steering Committee Corner!

This column will provide brief Steering Committee updates such as new reports or projects, coding changes, new data standards, requests for priority area network members for specific workgroups, and other information that NAACCR Steering Committees feel the NAACCR community should be aware of. We hope that this column helps to connect us as we continue to move forward with enhanced cancer surveillance.




Strategic Alliances

Chair: Nan Stroup, Co-Chair: Randi Rycroft


Committee Highlights since last Narrative:

  • NAACCR joined NCRA and One Voice Against Cancer (OVAC, http://www.ovaconline.org/) on Tuesday, October 22, 2019, for a special Hill Briefing on “Cancer Research: Challenges, Progress and the Role of Cancer Registries.” OVAC hosted a panel of speakers, including Dr. Vicki Benard from the CDC, who talked about how cancer registries are pivotal to cancer control and prevention, cancer research, and public health. This activity follows OVAC’s consensus agenda to educate policy makers on the importance of cancer registries and increase funding to NIH, NCI, and CDC NPCR.


  • NAACCR and Cancer Informatics for Cancer Centers (CI4CC, http://www.ci4cc.org/) teamed up during the CI4CC’s conference in Napa, California, for their Fall 2019 Symposium & Workshop October 14-16, 2019, “Intersections between informatics, data science and population science.” Isaac Hands, NAACCR Representative-at-Large, and Eric Durbin, both CI4CC members, worked with conference organizers to highlight NAACCR and solicit volunteers to serve on the new NAACCR Cancer Informatics Advisory Group, which is co-chaired by Gary Levin (FL) and Eric Durbin (KY). Thus far, five CI4CC members have volunteered to work closely with NAACCR on transformative informatics projects to be determined in the coming year. Marta Induni, PhD (CCR) and Lynne Penberthy, MD, PhD (NCI) also gave presentations spotlighting cancer surveillance data and the opportunities to collaborate with other organizations: “Using the Trees to See the Forest: Leveraging Central Cancer Registry Data for Near-Term and Operative Data Needs” (Induni) and “A Paradigm Shift in Surveillance to Represent Real World Data” (Penberthy).


  • Randi Rycroft, NAACCR President, has been an active member of the Comprehensive Cancer Control National Partnership (CCCNP, https://www.cccnationalpartners.org/). The CCCNP mission is to assist comprehensive cancer control coalitions to develop and sustain implementation of cancer control plans. NAACCR’s role is to ensure that cancer control efforts nationwide are using data to drive cancer control strategies. Randi attended an in-person meeting in October and there was one topic in particular from that meeting that may be of interest to NAACCR members. The CCCNP has an interest in rural cancer control, either as a new standalone focus area or weaving this through other existing focus areas (e.g., colorectal cancer screening in rural areas). NAACCR can be prepared to support this focus area by supplying data and perhaps helping to standardize definition(s) for rural in this context.


  • Betsy Kohler, Executive Director and many NAACCR members continue to work closely with the CDC NPCR and the National Association of Chronic Disease Directors (NACDD, https://www.chronicdisease.org/) improving registry operations and timeliness of cancer registry data. A meeting was held on October 4, 2019, where NAACCR reviewed findings from the work conducted in partnership with NAACCR registry members, and plan for next steps.


  • Randi Rycroft and Jim Hofferkamp attended a meeting with NPCR CDC, AJCC and CAP on October 24 to discuss our ongoing collaborative cooperative agreement. The Strategic Alliances Steering Committee has established meetings later this fall with these partners to discuss areas of mutual interest.

Recent Reports/Publications:






Photo above: OVAC Hill Briefing on 10/22/2019, Role of Cancer Registries. Left to Right: Mike Mizelle (CDC), Caroline Powers (OVAC), Vicki Benard (CDC NPCR), Nan Stroup (NAACCR), Lori Swain (NCRA)


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