Spring 2020 NAACCR Narrative Leave a comment

Welcome to the Steering Committee Corner!

This column will provide brief Steering Committee updates such as new reports or projects, coding changes, new data standards, requests for priority area network members for specific workgroups, and other information that NAACCR Steering Committees feel the NAACCR community should be aware of. We hope that this column helps to connect us as we continue to move forward with enhanced cancer surveillance.



Communications Steering Committee (CSC)

Chair: Melanie Williams

News to share with the NAACCR Community:

  • If you have work to promote or information you would like shared with the NAACCR membership, please don’t hesitate in contacting the Communications Steering Committee Chair at Melanie.Williams@dshs.texas.gov.

Professional Development Steering Committee (PDSC)

Co-Chairs: Mignon Dryden and Stephanie Hill


Committee Highlights since last Narrative:

  • Held Telecommuting Best Practices webinar on April 14. This document, complete with templates from multiple states and provinces, is available online.
  • Held webinar on Recruitment and Retention Toolkit May 6. Toolkit is available online.
  • If the topics above or other educational projects interest you, please consider joining the Professional Development Steering Committee by emailing Mignon Dryden (mdryden@crgc-cancer.org) or Andrea Sipin-Baliwas (asipin@usc.edu) or Carrie Bateman (Carrie.Bateman@hsc.utah.edu).
  • Andrea Sipin-Baliwas and Carrie Bateman will begin transitioning as co-chairs of Professional Development. Stephanie Hill took a new position as Associate Director at NAACCR and Mignon will be working with the NAACCR Strategic Management Plan Team.

If you are interested in working with Professional Development on these important projects or would like more information, please contact Stephanie Hill shill@naaccr.org or Mignon Dryden mdryden@crgc-cancer.org

Research and Data Use Steering Committee (RDUSC)

Co-Chairs: Susan Gershman and Sarah Nash


Committee Highlights since last Narrative:

  • RDU Committee members will provide reviewer support for the NAACCR coordinating of the Journal of Registry Management Fall 2020 edition.
  • The Committee is working to understand and address issues with the Census 2020 Population Estimates.
  • The following Work Groups continue to make progress on their respective projects: Confidentiality and Security, Data Assessment, and Synthetic Data Set.
  • Committee welcomed the following new members: Deb Hurley (SC), Keisha Musonda (TX), and Heather Zimmerman (MT).


  • Next Webinar: Topics in AI/AN Cancer Surveillance for Wednesday, May 20, 2020 at 2:00 pm eastern standard time.

Standardization and Registry Development Steering Committee (SRDSC)

Co-Chairs: Lori Koch and Winny Roshala

Committee Highlights since last Narrative:

  • Welcomed 2 new members to the Standardization and Registry Development Steering Committee, Deborah Hurley (SC) and Valerie Otto (UT).
  • 2018 Readiness Survey – Released the 3rd in a series of NAACCR member surveys at the beginning of May, to assess and monitor the implementation of the 2018 data changes on central registry operations.
  • NAACCR Death Clearance Manual – updated Appendix I to include the 2018 data items, distributed via NAACCR ListServ on 4/22/2020. Will begin a review of the entire Death Clearance Manual and update as needed.
  • Cancer Informatics Advisory Group (CIAG) – Lead by co-chairs Eric Durbin( KY) and Gary Levin (FL), formed the new advisory group membership, developed a charter and have held 2 meetings to discuss priorities.
  • XML Work Group – Updated the XML Standards document; will conduct a webinar in July of their presentation originally planned for the 2020 NAACCR Annual Conference.
  • NAACCR 2021 Implementation Guidelines Task Force – Lead by co-chairs, Jenna Mazreku (CA) and Dan Curran (CA), membership established, meetings held with writing assignments made.
  • NAACCR EDITS Manual developed and posted to the NAACCR website.
  • NAACCR Volume I – Data Exchange Standards & Record Descriptions – Task Force developed, a charter was created, and members recruited.
  • NAACCR Volume V – Pathology Laboratory Electronic Reporting – Updated the document.
  • S&RD Co-chairs represented NAACCR on the Mid-Level Tactical Group.
  • Requested updated rosters and chair/co-chair information from the Work Groups, Task Forces and Advisory Groups under the S&RD umbrella.
  • The S&RD is still seeking members for the following:
    • Death Clearance Manual Task Force

If you’re interested in volunteering to serve on this task force or want more information about the task force, please send an email to either Winny Roshala at WRoshala@crgc-cancer.org or Lori Koch at Lori.Koch@Illinois.gov.

Susan T. Gershman
Massachusetts Cancer Registry




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