Fall 2021 NAACCR Narrative Leave a comment


Recinda Sherman, MPH, PhD, CTR
NAACCR Program Manager of Data Use and Research
rsherman@naaccr.org

 

 

With Halloween nearly upon us, I would like to voice my support for the frequently slandered spider. Spiders deserve our backing, as many of them provide us with free, in-home pest control. And it turns out that some spiders are just as frightened of themselves as we are of them (read about it here: spiders are scaredy cats). If that weren’t enough, it turns out that assassin bugs stealthily stalk arachnids around their own homes-er webs! These wily “hit bugs” sneak up and tap hapless spiders on their spidey shoulders. This befuddles our 8-legged heroes long enough for the mean ole bugs to inject a lethal dose of venom (read about it here: straight up assassins). So hug all your arthropods, but especially your Araneae. And now…back to cancer-related stuff.

NAACCR Call for Data

We do have one new resource this year that was developed after our September 2021 Call for Data Instructional Webinar. To assist in deduplication, we have instructions and materials to provide registries the option of using Match*Pro for both full deduplication of the registry data as well as apply the CFD Deduplication Protocol. We appreciate any feedback on these tools you may have.

This year we requesting all registries submit 12 month data for cases diagnosed in 2020 to help us get an early assessment of the impact of Covid-19 on both cancer surveillance and outcomes. We will happily accept the 2020 cases as late as January 31st, 2022.

CiNA Research Network

RDU has a new work group—CiNA Research Network. The essential work of this group is defined in its charter as identifying topics for scientific publications that describe the data and methodology used to generate CiNA data and the CiNA Monographs. This work group will also identify topics beyond the CiNA Monograph that are appropriate for publication, either as NAACCR CiNA products or peer-reviewed manuscripts. CiNA Research Network will coordinate these CiNA-supported publications to encourage appropriate application of methods, use of data, and interpretation of results. CiNA Research Network has two areas of emphasis: 1) to foster collaboration across cancer registries and professional generations; and 2) to encourage a diverse range of registry and investigator perspectives. Once CiNA Research Network has developed a work plan, we will be actively recruiting for new members to this group. So keep an eye out for the solicitation of interest from the Members Ambassadors Program (MAP).

NAACCR Talks

NAACCR Talks, the NAACCR webinars that focus on research and data use topics, are moving to a new time slot—Mondays at 2pm EST. NAACCR Talks are announced via the general listserv but you can always look on our Upcoming Events section in our Education & Training Portal to register for future NAACCR Talks. And you can find the recordings of past webinars, in the NAACCR Talks section of Portal. Spoiler alert though—we don’t have any scheduled for the month of November, so please let me know if you have a topic you would like to see presented.

NAACCR Emails

Just a quick reminder that much of NAACCR communication is through listservs and other emails. All NAACCR listservs, general and targeted like the Call for Data listserv or SHARE site emails for work groups, goes out with the @connectedcommunity.org domain. And emails from our new Data Request Tracking System (DaRT) for access to CiNA data sends emails from @imsweb.com. Please confirm these domain names are on your white or safe lists in your email to ensure you receive the emails as intended.

 

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As always, if you have any questions, concerns, or revolutionary ideas in the NAACCR Research and Data Use area, please contact me rsherman@naaccr.org.

 

 

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