Winter 2019 NAACCR Narrative Leave a comment


Recinda Sherman, MPH, PhD, CTR
NAACCR Program Manager of Data Use and Research
rsherman@naaccr.org

 

 

Research & Data Use

If you at home having a snow day today, please know that we in Southern California are also feeling the polar vortex—we had light frost two days last week! Laugh if you will, but the low 40s do feel cold if you don’t own a proper coat. And there is my metaphor for today—we need a proper coat (resources) to do our work. One of the many strengths of NAACCR is the ability to reach out to other states for guidance as we move forward in our work. And one way to do this is through pre-Conference Workshops.

Pre-Conference Workshops: We have a slate of workshops planned for Vancouver this year including new and improved versions of Basic and Advanced SEER*Stat and Match*Pro Training. We also have an introductory class on METRIC. METRIC is a system designed to assess relationships between health and environmental metrics, with the goal of using neighborhood-level prevention strategies to address health disparities. Two new half day courses are also available—one on collecting meaningful qualitative data for cancer research and a second on available tools and software to improve data quality and automate parts of the abstractions process. For dates and other logistics, please visit the Workshop Tab on our Conference page: https://www.naaccr.org/naaccr-iacr2019/#workshops. I hope to see you in Vancouver!

Call for Data: Call for data is a wrap, and we are moving forward with data quality reports, certification, and CiNA. This year we had a total of 68 NAACCR submissions: 56 sent 12-month data, 43 sent XML (up from 26 last year), 55 sent the new County at Diagnosis—Analysis codes, and 64 sent the new survival codes.

There are still a number of registries that have not completed the CaRRI database. The purpose of the CaRRI (Cancer Registry Researcher Information) database is to assemble information on how to access registry data across North America to, ultimately, support cancer surveillance research. This year, each registry will need to enter baseline data that used to be collected partially during Call for Data and partially through the CDC IRB Assistance site. In subsequent years, registries will only need to review the data annually and update as needed.

SHARE: You may have heard that NAACCR has moved to a new committee on-line workspace. One of the advantages of this system, SHARE, is the ability to create user/role based email distribution lists. This enables NAACCR to decrease the number of general listserv emails sent and to target relevant information to members who need it. I am currently setting up two groups—one to send out information on Call for Data and one for information on the Geocoder. I will be reaching out to registries to identify the key personnel for those lists. Please ensure the appropriate staff are included on these lists so important information won’t be missed. For more information on SHARE, please review the listserv sent from Charlie Blackburn on January 31, 2019.

 

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