Fall 2022 NAACCR Narrative Leave a comment


Recinda Sherman, MPH, PhD, CTR
NAACCR Program Manager of Data Use and Research
[email protected]

 

 

I am writing this RDU update from beautiful Sedona. So, take a moment before reading this update to visualize gorgeous, red rock vistas at every turn. Here is my picture of the Chapel of Holy Cross Church (professional shots here), which is about as peaceful a spot as I have ever been. As we near the end of yet another challenging year, may we experience many moments of tranquility.

 

 

NAACCR Call for Data (CFD)

Well—we are in the thick of NAACCR Call for Data, due December 6, 2022. Please make sure to read the CFD listservs for timely updates. The NAACCR CFD Portal is now open. If you are having trouble accessing the NAACCR CFD Portal, please contact me directly.

 

CiNA Explorer

NAACCR CiNA Explorer will be updated again mid-November. We are adding state-level survival and prevalence. The addition of trends is still outstanding. We welcome feedback on other statistics you would like to see in CiNA Explorer.

 

Annual Report to the Nation

Part 1 of the Annual Report to the Nation on the Status of Cancer (ARN), which was led by NCI, has been released. Part 1 includes standard national-level statistics (through 2018 incidence and 2019 mortality). An overview, a press release and the paper are available here: https://www.naaccr.org/annual-report-to-the-nation/.

Part 2 will be released early next year. This secondary, special focus paper will cover early estimates of the impact of COVID-19 on the counts of certain cancers, including female breast, colorectal, lung, prostate, pancreas and thyroid. Part 2 will look at the ratio of expected versus observed cases in year 2020 by sex, race and the month of diagnosis. Part 2 will also provide an early assessment of differences between observed and expected cancer cases by the stage at diagnosis.

 

Standard Populations (2020 and beyond)

There is on-going work by the Census and ABSM (area based social measures) Workgroup that will address the many current and looming issues with population data. Here are brief summaries of some of the issues and current status.

2020 Census

Issue: A differential privacy approach was incorporated in the 2020 Census data release. CDC, NCI, and individual workgroup members provided feedback to the census regarding how the approach impacted the reliability of the denominator data needed to calculate our standard cancer rates. Preliminary versions of the 2020 data indicate that urban minorities and American Indians/Alaskan Native populations may be underreported. Additionally, the release of the 2020 and related Census products we use to create the SEER standard population files are delayed.

Status: Modifications in the population file production timeline have been made to accommodate the delay in data release. Final assessment of the impacts of differential privacy cannot be conducted until we have the 2020 population.

Bridged Race

Issue: The National Center for Health Statistics (NCHS) is no longer generating the bridged race file we have historically used to report cancer data by race. We have to adjust how we calculate race/ethnicity to accommodate to changes in the available denominator files.

Status: Once we have the updated 2020 census data, we will be comparing rates by three different race/ethnicity categories. Once we have made an assessment of the impact of each of these methods, we will recommend an approach.

Option 1: Bridged-race (current method which we may not be able to support)

  • Hispanic
  • NH-White
  • NH-Black
  • NH-API
  • NH-AIAN (restricting to PRCDA counties)
  • All Races combined

Option 2: Alone-race (NCHS/mortality approach)

  • Hispanic
  • NH-White alone
  • NH-Black alone
  • NH-Asian alone
  • NH-NHPI alone
  • NH-AIAN alone (restricting to PRCDA counties)
  • Multiple race
  • All races combined

Option 3: Alone & in combination (potential incidence method)

  • Hispanic
  • NH-White alone & in combination
  • NH-Black alone & in combination
  • NH-Asian alone & in combination
  • NH-NHPI alone & in combination
  • NH-AIAN alone & in combination (restricting to PRCDA counties)
  • All races combined

Other Issues

We are also incorporating additional older ages groups for more precise age-adjustment, and we are working to provide population files to support the reporting of cancer rates for Asians separate from Pacific Islanders. A new WG has been approved and will be tackling some of the many issues with cancer reporting for American Indian/Alaskan Natives.

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For more information or to get involved in one of these issues, please contact me. And, as always, if you have any questions, concerns, or revolutionary ideas in any other part of the NAACCR Research and Data Use area, please contact me [email protected].

 

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